Sunday, January 1, 2012

24 Hours For Hank

Happy New Year! I hope 2011 was good to all of you and 2012 brings much happiness to you and your family. One of the things I am really looking forward to in 2012 is attending a wonderful fundraiser event for our friends son who has a rare genetic disease.


For those who don't know, I worked professionally as a graphic designer for over 6 years until I became pregnant with #1 and decided to trade it in to stay at home with my baby. But fortunately I am still able to do freelance work occasionally under my own company Rain City Graphics. I frequently do flyers for my sons preschool as well as a couple other fun side projects like rehearsal dinner and bridal shower invitations, a company logo, and this one: 


a ski poster for 24 Hours of Schweitzer.
It means a lot to me to be able to work on this poster. Henry (or Hank as his friends call him) was diagnosed with Cystinosis in November 2007. It affects approximately 500 people in the United States (mostly children), and about 2,000 people worldwide. This disease causes the amino acid “cystine” to accumulate in the body’s cells. Over time, cystine buildup slowly destroys various organs including the kidneys, liver, muscles, white blood cells, eyes and central nervous system. 


Because Cystinosis is such a rare disease that affects such a small population, research money is scarce to nonexistent. Hank's friends and family started 24HoursforHank.org to help raise funds for cystinosis research.


This ski poster is for their next fundraiser, 24 Hours of Schweitzer on March, 30 2012 at Schweitzer Mountain Resort. We will be there supporting and skiing for Hank! If you are interested in finding out more about this event visit www.24HoursofSchweitzer.com.



Hank (left) and my oldest son (right) on Father's Day 2011.


Reading side-by-side at Powell's books in downtown Portland, OR.

2 comments:

  1. Thank you for sharing such a touching story with Sharing Saturday! I hope the fundraiser is a huge success!!

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  2. Thanks Carrie! I think I meant to link to my New Year's Poppers on your share Saturday, but I'm glad to know you read this post as well :)

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